Praying for science and a new little.

The Hard Stuff

The Hard Stuff

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Being able to refer to Beryl as my daughter is one of my favorite things. I seem to have a lot of favorite things these days, though. She’s easy to love. She’s easy to snuggle. It’s my favorite now that she tracks me with her eyes and seems to have discovered a little bit of the world around her. There’s so much joy in watching her learn new things and grow every day.

But hearing Beryl’s name called every time we go to a doctor’s appointment is really hard.

I didn’t expect there to be so many appointments. I didn’t expect it to be this hard to watch my daughter go through pain. It feels like my heart leaves my body every time.

Hard was watching her go through unexpected medical hurdles so early on. Hard was sitting in the waiting room yesterday while she underwent a long MRI. Hard is spending last night in the hospital and still being here right now. Hard is still not having all the answers, and hard is not knowing what comes next.

Hard is learning that we won’t be home for her one-month birthday today and are instead preparing for another two nights in the hospital while the doctors run tests.

What I can share is that, thankfully, doctors believe this is something that can be treated and managed. We are incredibly grateful for that. Even so, it is scary and overwhelming. We’re just a little family who wants to celebrate Beryl’s first month alive today, and instead we’re spending it in a hospital room and undergoing procedures. 

I guess we’ll be taking her official one-month birthday photos whenever we get discharged. We arrived on Monday and we hope to be home Thursday.

I’m not ready to go into more medical details, but I am ready to ask for prayers, love, and hopes for good news.

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